Cross-platform distributed rare disease management system

Abstract

The invention discloses a cross-platform distributed rare disease management system, which comprises an application layer, a middle layer, a data storage layer and a base layer; the application layercomprises a client, a WEB end and an API interface; the data storage layer comprises a database; the basic layer comprises a server and is used for managing rare diseases, integrating resource information related to the rare diseases and storing the resource information through the database. The resource information related to the rare diseases can be conveniently managed, and the resource information related to the rare diseases is centrally managed. The system can better perform analytical statistics on various data, improves the credibility level of analysis and statistics through big data,can be used for management of patients with rare diseases in hospitals, reduces the workload of medical staff, enables doctors to master the conditions of the patients conveniently, can be used for scientific research related to rare diseases, and provides sufficient medical record data and analysis and statistics support. Related organizations can master resource information related to the rarediseases and related conditions of the patients with the rare diseases through the system, and the application also benefits the patients with the rare diseases.

Description

technical field [0001] The invention relates to a management system, in particular to a cross-platform distributed rare disease management system. Background technique [0002] Rare diseases refer to diseases with a very low prevalence rate and are rarely seen. They are generally chronic and serious diseases, often disabling or even life-threatening, also known as "orphan diseases". [0003] According to the definition of the World Health Organization (WHO), there are more than 6,000 types of rare diseases internationally recognized, accounting for about 10% of human diseases, of which 80% are genetic diseases caused by genetic defects. The proportion of patients with rare diseases is 0.065% to 0.1%. [0004] According to statistical estimates, the base of patients with rare diseases in my country is very large, estimated to exceed 10 million. Therefore, my country pays special attention to the field of rare diseases. In May 2018, five ministries including the National Heal...

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Problems solved by technology

[0004] According to statistical estimates, the base of patients with rare diseases in my country is very large, estimated to exceed 10 million. Therefore, my country pays special attention to the field of rare diseases. In May 2018, five ministries including the National Health Commission, the Ministry of Science and Technology, and the State Drug Administration jointly The "First Batch of Rare Disease Catalog" was released, which included 121 rare diseases. However, compared with the international rare disease field, my country's rare disease field has deficiencies in many aspects, such as low level of diagnosis and treatment, few scientific research resources, social Lack of security policies, insufficient social publicity and public awareness, among which rare disease information resources are the basis and key to solving the above problems, but the current rare disease information resources have problems such as lack of resources, incomplete information, unconcentrated information, and difficulty in sharing information resources , there are few domestic solutions for information resource management in the field of rare diseases

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