Rare disease research group management method, storage medium, and computer program product

Abstract

The invention discloses a rare disease research group management method. The method comprises the following steps: a server receives a single-center group creation request or a multi-center group creation request sent by a client corresponding to a user proposing a group creation request; the server directly creates a corresponding single-center group according to the single-center group creationrequest and allocates a group identifier to the single-center group; or the server verifies the multi-center group creation request; and if the verification is passed, the server creates a corresponding multi-center group according to the multi-center group creation request and allocates a group identifier to the multi-center group, and if the verification is not passed, the server sends a multi-center group verification result to a client corresponding to the user who makes the group creation request. According to the invention, researchers researching the same disease can form a group, and intra-group data sharing is realized, so that effective rare disease research can be carried out.

Description

technical field [0001] The present invention relates to the technical field of group management, in particular to a rare disease research group management method, storage medium and computer program product. Background technique [0002] Rare diseases are referred to as "rare diseases" for short, also known as "orphan diseases". Most rare diseases are chronic, severe conditions that are often life-threatening. About 80% of rare diseases are caused by genetic defects, so rare diseases generally refer to "rare genetic diseases". According to the report of the World Health Organization (WHO), there are more than 5,000 recognized rare diseases, accounting for about 10% of human diseases; about 50% of rare diseases can occur at birth or in childhood, and the disease often progresses Rapidly, the mortality rate is very high, and most of them still have no effective treatment method, which causes great suffering to the patients. [0003] Rare disease is a relative, dynamic, and ...

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Problems solved by technology

[0006] In view of this, the purpose of the embodiment of the present invention is to propose a rare disease research group management method, storage medium and computer program products, which can solve the problem that researchers cannot carry out rare disease research in the form of group collaborative work and case sharing. question

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