Rare disease registration method

Abstract

The invention discloses a rare disease registration method. The method comprises the following steps: S1, establishing a rare disease registration system; S2, logging in a rare disease registration system through a pre-registered user account; S3, judging whether a related rare disease is added into a rare disease registration system or not: if yes, ending the method, and otherwise, continuing toexecute the step S4; S4, uploading a to-be-audited file which needs to be submitted for performing queue research on the related rare disease to the rare disease registration system; S5, auditing theto-be-audited file: if auditing is passed, continuing to execute the step S6, and otherwise, returning to the step S4; S6, registering the related rare disease into the rare disease registration system. Rare diseases can be efficiently and comprehensively registered, the registered rare diseases are managed in a unified and normative mode through the built system, and sub-disease management of disease types of the rare diseases, management of different branches of the same disease type and the like are achieved through the ICD-11 international classification standard.

Description

technical field [0001] The invention relates to the technical field of medical information, in particular to a rare disease registration method. Background technique [0002] Rare diseases, as the name implies, refer to diseases with very low prevalence and rare occurrence. Most rare diseases are chronic, severe conditions that are often life-threatening. According to the report of the World Health Organization (WHO), there are more than 5,000 kinds of rare diseases that have been confirmed at present, accounting for about 10% of the types of human diseases. Rare disease is a relative, dynamic, and changing concept. Different countries and regions in the world do not have a unified standard for the definition and classification of rare diseases. Countries have different definitions of rare diseases, their population, economic development level, and incentives for the development of rare drugs. related to policies and coverage for rare disease medical expenses. On May 17, ...

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Problems solved by technology

[0005] In view of this, the purpose of the embodiment of the present invention is to propose a rare disease registration method, which can solve the problems that the existing technology cannot achieve efficient and comprehensive registration of rare diseases, and unified and standardized management of registered rare diseases.

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