Full-datamation rare disease case library and MDT discussion platform

Abstract

The invention provides a full-datamation rare disease case library and MDT discussion platform. The full-datamation rare disease case library and MDT discussion platform comprises an original data acquisition module, a data storage platform and an application layer module, the original data acquisition module is used for acquiring original data and transmitting the original data to the data storage platform; the data storage platform is connected with the application layer module; the data storage platform comprises a database and a cloud storage module; wherein the database and the cloud storage module are respectively connected with the original data acquisition module, and the database and the cloud storage module are respectively connected with the application layer module; and the application layer module comprises an EMR electronic medical record sharing module, an unstructured data diagnosis level browser, an organization sample tracking module, an orphan drug species library, an MDT discussion platform and an APP. On the basis of a full-datamation rare disease medical record library, doctors and experts in related fields can directly carry out MDT discussion, a treatment scheme is further improved, and treatment and follow-up records are established.

Description

technical field [0001] The invention belongs to the field of data processing, and in particular relates to a fully data-based rare disease case database and an MDT discussion platform. Background technique [0002] There are currently more than 120 national rare diseases known. At present, many countries have information about rare diseases and registration databases for rare diseases. For example (GARD) in the United States and Orphanet in the European Union. However, in China, there are only a few case registration systems for rare diseases, and rare diseases have always been in a state of lack of epidemiological data, which seriously hinders the development of medical treatment, scientific research, and health policy formulation for rare diseases. [0003] Although several rare disease databases have been established in China, they are only limited to the translation and collection of rare disease literature, and the medical records of rare disease patients are all manua...

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Problems solved by technology

[0003] Although several rare disease databases have been established in China, they are only limited to the translation and collection of rare disease literature, and the medical records of rare disease patients are all manually filled in paper, which is inefficient and difficult to count, and cannot form academic exchanges and sharing , limiting the improvement of the country's rare disease treatment level

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