Rare disease information management method and device and computer readable storage medium

Abstract

The invention discloses a rare disease information management method and device based on a B / S framework and a computer readable storage medium. The method comprises the following steps that 1, a researcher registers and logs in a rare disease information management system; 2, the researcher checks disease information of a certain rare disease in the rare disease information management system; step 3, the researcher adds patient case information of a certain rare disease into the disease information of the certain rare disease; 4, the researcher performs case analysis and research on the caseinformation of the patient with the rare disease. The method provided by the invention can assist the researcher to carry out effective rare disease research, and the diagnosis efficiency of rare diseases is improved.

Description

Technical field [0001] The invention relates to the technical field of medical information systems, in particular to a method, equipment and computer-readable storage medium for rare disease information management based on a B / S architecture. Background technique [0002] Rare diseases are abbreviated as "rare diseases" or "orphan diseases". As the name suggests, they refer to diseases with very low prevalence and rare diseases. Most rare diseases are chronic and serious diseases, usually life-threatening. About 80% of rare diseases are caused by genetic defects, so rare diseases generally refer to "rare genetic diseases". According to the World Health Organization (WHO), there are currently more than 5,000 recognized rare diseases, accounting for about 10% of human diseases; about 50% of rare diseases can be onset at birth or childhood, and the disease often progresses Rapidly, the mortality rate is very high, and most of them have no effective treatment methods, causing great...

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Problems solved by technology

[0008] In view of this, the purpose of the embodiment of the present invention is to propose a method of rare disease information management based on B / S architecture, which can solve the problem that the existing system cannot realize the efficient collection of rare disease case data, accurate statistics, and timely release of statistical data , In-depth research on rare diseases, timely release of research results, popularization of disease knowledge, and integration of authoritative medical websites and databases

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